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Congressional Briefing: Speaking with Keratoconus Patients About Research and Treatments

Sponsored by the Alliance for Eye and Vision Research

AEVR is joining with the National Keratoconus Foundation (NKCF) to recognize World Keratoconus Day 2021. Keratoconus (KC) is an eye condition in which the normally round, dome-shaped cornea—the transparent front of the eye—becomes weak and irregular, resulting in vision distortion, double or blurry vision, and light sensitivity. Researchers believe that certain individuals have a genetic predisposition to develop it, and a 2021 study from Australia suggests prevalence of 1.2 percent of the population, meaning it affects the lives of more than 3 million Americans. Speakers Christopher Rapuano, MD (Wills Eye Hospital) and Christine Sindt, OD, FAAO (University of Iowa) will address how they speak with newly diagnosed KC patients about research and treatment options. In addition to the NKCF, AEVR’s co-sponsors include Research to Prevent Blindness and the Eye Bank Association of America, with event management support by Glaukos and streaming support by ARVO and Novartis. View the briefing invite here, and to register contact Dina Beaumont at 202-407-8325 or dinabeau@aol.com.